Help shape the future of health data research

The North West Research Secure Data Environment (SDE) Public Advisory and Accountability Group (PAAG) is seeking members of the public to provide input on the development of a secure digital system for health and public data research.

As part of NHS England’s digital strategy, this initiative aims to bring together currently separate data sources—spanning health, care, environment, and travel—into a secure, pseudonymised digital environment. Researchers will be able to apply to access de-identified data to support studies that could improve healthcare, public services, and policy making.

To ensure transparency and public trust, it is essential that local people are involved in shaping this system. The PAAG will play a key role in advising on the design, expectations, and safeguards around the use of health and social data for research.

Who can get involved?

The group is open to people of all ages and backgrounds, and no prior experience in health data, research, or advisory roles is required. The aim is to gather diverse perspectives to ensure the system meets public expectations and operates responsibly.

What to expect

• Monthly online meetings (2 hours)

• £50 payment per session

• Opportunities to contribute to an important national initiative

This work is being led by teams from the Lancashire and South Cumbria, Cheshire and Merseyside, and Greater Manchester Integrated Care Systems.

For those interested in contributing to this critical development in secure health data research, this is an opportunity to have a direct impact on how data is used for public benefit.

To register, visit North West Secure Data Environment [forms.office.com] or contact Nichola.Verstraelen@lthtr.nhs.uk for more information.